Welcome to the US Hereditary Angioedema Association, a non-profit advocacy organization serving people with Hereditary Angioedema (HAE) and their caregivers. HAE is a very rare and potentially life-threatening genetic condition involving swelling of various parts of the body, hands, feet, or face. Our association is a community of people affected by HAE and their loved ones who are leading the fight in HAE research, advocacy and finding a cure. Through a passionate commitment to the HAE community, we offer a wide variety of services and resources that further HAE education, clinical research, community engagement, access to medications, personalized support networks, and a wide range of services to help people living with HAE lead a normal life.

TAKE
ACTION

Your contribution helps fund our many programs and resources for people living with HAE and their loved ones

DONATE

Join our efforts to maintain a strong political advocacy presence on Capitol Hill

ADVOCATE

Get involved and help serve our community

VOLUNTEER

Participate in one of our many ongoing initiatives, or create your own!

FUNDRAISE

TAKE
ACTION

Educate medical staff
about HAE

GET AN ER TOOLKIT

Create and host an event as a fun way to get involved and help educate your community about HAE

CREATE AN EVENT

Register as a patient or caregiver member of the HAEA

JOIN US

Participate in camps, activities and other youth events!

JOIN THE YOUTH PROGRAM

IN OUR OWN WORDS