US Hereditary Angioedema Association

Welcome to the US Hereditary Angioedema Association, a non-profit advocacy organization serving people with Hereditary Angioedema (HAE) and their caregivers. HAE is a very rare and potentially life-threatening genetic condition involving swelling of various parts of the body, hands, feet, or face. Our association is a community of people affected by HAE and their loved ones who are leading the fight in HAE research, advocacy and finding a cure. Through a passionate commitment to the HAE community, we offer a wide variety of services and resources that further HAE education, clinical research, community engagement, access to medications, personalized support networks, and a wide range of services to help people living with HAE lead a normal life.

HAE Explained: An introduction to HAE for the general community

HAE for Kids: A child-friendly video covering key HAE vocabulary, symptoms, and triggers

OUR
MISSION

To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.

OUR
VISION

Unrestricted access to therapy so people affected by HAE are unburdened by symptoms and able to experience life to the fullest.

OUR
VALUES

To fulfill our community's highest priority needs with innovative programs, services, and activities that are delivered with an extraordinary level of empathy, kindness, and compassion.